摘要
目的调查哮喘患儿主要照顾者的照顾负担程度和患儿生存质量情况，分析照顾者负担与患儿生存质量之间的相关性。方法采用方便抽样方法，抽取上海市儿童医院2016年10月—2017年3月159名哮喘患儿的照顾者为研究对象，采用Zarit照顾负担量表和儿童生存质量测定量表（PedsQL4.0）调查其照顾负担和儿童生存质量，使用SPSS 22.0软件对资料进行统计分析。结果本组哮喘患儿生存质量得分（80.67±14.02）分，照顾者负担得分（36.30±18.84）分。不同文化程度、月收入水平照顾者照顾负担得分差异有统计学意义（t值分别为5.669、5.029；P〈0.01）。照顾者负担与患儿生存质量呈负相关（r=-0.509，P〈0.01）。结论哮喘患儿照顾者文化程度较高照顾负担较轻，而经济收入水平越低，照顾负担越重，其患儿生存质量越差。建议加强对哮喘患儿照顾者的健康教育，以降低照顾负担和提高患儿生存质量。
Objective To investigate primary caregivers＇ caregiver burden and pediatric patients＇ life quality among pediatric patients with asthma and to analyze the correlation between them. Methods From October 2016 to March 2017, we selected 159 caregivers of pediatric patients with asthma from Children＇s Hospital of Shanghai as subjects by convenience sampling. The Zarit Caregiver Burden Interview （ZBI） and Pediatric Quality of Life Inventory （PedsQL 4.0） were used to investigate caregiver burden and life quality of children. The SPSS 22.0 was applied in analysis of data. Results The score of life quality of pediatric patients with asthma and caregiver burden were （80.67 ± 14.02） and （36.30± 18.84） respectively. There were statistical differences in carcgiver burden among caregivers with different education levels and economic income （t=5.669, 5.029 ; P 〈 0.01 ）. The caregiver burden was negatively correlated with life quality of pediatric patients （r=-0.509, P 〈 0.01）. Conclusions Caregivers with a high level of education have light caregiver buMen. Caregivers with a low level of economic income have heavy caregiver burden. The heavier earegiver burden, the worse the quality of surviral care for childern. We should strengthen health education for caregivers of pediatric patients with asthma, decrease caregiver burden and improve life quality of pediatric patients.
作者
王佳妮
李爱求
李田田
姜允丽
吴蓓蓉
董晓艳
陆敏
Wang Jia＇ni;Li Aiqiu;Li Tiantian;Jiang Yunli;Wu Beirong;Dong Xiaoyan;Lu Min(Department of Respiratory,Children＇s Hospital of Shanghai Jiaotong University,Shanghai 200040,Chin)
出处
《中华现代护理杂志》
2018年第20期2414-2418,共5页
Chinese Journal of Modern Nursing
基金
上海申康医院发展中心临床科技创新项目（SHDC12016215）
关键词
哮喘
儿童
生存质量
照顾负担
相关性
Asthma
Child
Quality of life
Caregiver burden
Correlation
